Shingles and Spells

It has certainly been a hectic two weeks since the last blog update. You will remember that Tabby had been a little under the weather but seemed to be getting back to her old self. Two Saturdays ago, friends, Juliet and Sean hosted a Wimbledon themed charity afternoon tea. Loads of wonderful cakes and sandwiches and games and puzzles to play. Great fun in aid of “Its Good 2 Give” and “Pancreatic Cancer Research Fund”. Lots of money raised and still counting.

"How many tennis balls in the box?"

That evening, Donella and I had been invited out to dinner. Tabby had earlier complained of a sore ear. Before we left we checked her temperature - 38.6 C . Cancel dinner (5 minutes notice – sorry Mark and Kelda!) and off to the “Sick Kids”. In A&E until 10pm then back to wd 2. It is testament to the staff of Wd 2 at the “Sick Kids” that Tabby is never obviously upset at being re-admitted to the ward – old friends, great nurses and respite from those bumbling amateurs Mum and Dad. As ever, Donella stayed in Hospital with Tabby.  Ewan and Olivia sadly are never impressed with my home cooking.

Ewan with a day's supply of chicken nuggets

During Tabby’s hospital stay, the hospital radio station – “Radio Lollipop” held a competition for the best spell in “Sick Kids Magic Week”.  Given that Tabby has not yet relinquished her two loose front teeth, we concocted the “Loose Tooth in ma Mooth” spell and sent it in.  More later. Tabby had high dose iv antibiotics for three days then home on tablets. Oh well!  We had expected Tabby to be vulnerable to infections resulting in admission such as this to hospital from time to time. This was the first time after six months of chemo. Because of this episode her next round of chemo was postponed.

When Tabby returned home we noted she had a couple of red patches on her foot – a bit sensitive but not looking like an infection. Late on Saturday night (4days ago) the red patch developed a blistered “vesicular” appearance. Even an Orthopaedic surgeon can recognise shingles! Sunday morning  and we are back to A&E at the ”Sick Kids”. By this time not only were the lesions very painful and sensitive but she also had lesions on her knee and thigh. With a contagious condition Tabby was not admitted to Ward 2 with all those immuno-compromised children.

We are now in Ward 3 . The bad news is she is in a side room and not allowed out until the lesions have healed. The good news is that for the first time we can get mobile phone reception! Tabby is now on high dose iv Acyclovir through her “Wiggly”. This can be a bit rough on her kidneys so she also has a lot of iv fluids as well, which means a pee every hour or so – or so it seems. Her neutrophil white cell count was rock-bottom and probably  explains the onset of Shingles.

Last night he people from Radio Lollipop came up to ward 3 and told us that Tabby had won the “Spell” prize. They gave her a certificate and a  balloon craft game and read out her spell over the hospital radio.  She even had a request played over the radio - not that I had ever heard of the song she asked for. Tabby was absolutely delighted.

As you will see our first 2 weeks of school holidays has really not gone as we had anticipated. Despite 2 hospital admissions and the pain of shingles, Tabby’s mood has never faltered. Funny, inquisitive, cheeky and verging on the manic – she has really kept us going. Tomorrow heralds a change of plan. Up until now, Donella has stayed in hospital at night with Tabby – sleeping on a camp bed in her room.  I guess it’s my turn now. After I finish writing this, I am off to pack my bag - lap-top, videos for Tabby and me, fruit, sweets and sensible pyjamas. I hope I don't snore too loudly.  I may have the odd stroll to the “Earl of Marchmont” if all goes well – simply for a breath of fresh air of course.

Yet more trivial pursuits

 As ever, thank you all so much for reading this blog and a special thanks to everyone for their good wishes and support.  

 The Lawsons