At the last
blog, Tabby had just completed her eight week regime of increasing doses of methotrexate.
We were expecting a 2 week interlude before returning to the fray – the “Delayed
Intensification no.1”. Actually we got
it wrong – there was no 2 week holiday and Tabby was straight back to the “Sick
Kids” for the next challenge. This involves 8 different chemotherapy agents
at various intervals over the next eight weeks. Again, the high dose steroids
seem to have the most profound effects.
I was away in London with Ewan during the first week of June. We
returned as Tabby finished her first
seven day course of steroids of this regime. For the first time in ages
she looked genuinely tired, miserable and down.
Having not seen her for a week it was really a shock.
On Sunday
she went to Sunday school and although she had a nice time was completely
washed out for the rest of the day. She
just didn’t know what to do with herself.
Her favourite games and dvd’s held no appeal. Her steroids stopped (for
the moment) on Monday and she has since returned to her normal cheerful
self. This evening Tabby stated that she
slept so much last week “...because she couldn’t think what else to do!” The
only upside of the steroids I can see is her appetite return and she has gained
1kg since the start of June.
Ewan and I
were in London at the start of the month ostensibly for his work experience
week although it did coincide with the Queen’s Diamond Jubilee. It was a good time
to be in London. Back home, Tabby – or was it really the Queen? – celebrated the
Diamond Jubilee in regal manner.
School this
week has been a bit erratic due to
combination of chemotherapy at
the “Sick Kids” and feeling off colour.
We have had an “about –turn” on arriving at school, an unscheduled “come and
get me” after an hour and one day off. Today was Tabby’s “Special Day” at
school – a day where she is allowed to go to the front of the queues , she
wears a special badge and classmates stand up and say nice things about
her. This is not a day to miss –
although, as ever, she had to leave early for more chemotherapy this afternoon.
This weekend
we are off to see the musical “Oliver” at the Playhouse. This is Tabby’s favourite
musical. We have already seen a steroid induced “Food glorious food” this week
and without doubt they do make her a bit “Ron Moody”! On Monday we go back to hospital
where in the words of Fagan “We are reviewing, the situation....”.
I have now
run out of “Oliver” puns.
As ever,
Thank you for reading this blog,
The Lawsons
Hi Tabby
ReplyDeleteYou really are such an inspiration the way you keep going. It will soon be time for the school holidays and I hope the weather improves for you to enjoy some sunshine!
I hope you enjoyed Oliver at the weekend - I went to see it last week and really enjoyed it. The singing and the music was great and I'm sure you were word perfect! I also loved the set changes.
Take care and hope to see you soon once you are on your hols.
Love
Bernie x